the AIDS patient
i know he has AIDS. i know, for a fact, that he is dying.
i also know this sounds totally cold, but you know what, i just don’t care anymore. i treated him with respect. i looked past the truth that he got the virus out of abusing IV drugs. he was my patient, and he needed my help. he didn’t have a long time to live, but i was optimistic i can make a difference, even a tiny one.
well, me and my grand ideas!
for the past three weeks or so, every nurse who has taken care of him warned me about his attitude. they used every sort of word to prepare me. obnoxious, stubborn, hard headed, manipulative, condescending. hard as it was, i tried to erase all the images and started on a clean slate.
he has every right to be angry, i told myself. of course he hates life and everything in it. i mean, why wouldn’t he? he is only in his 30s. he is supposed to be at a point in his life when he is starting to enjoy it, but he’s not. instead, he is starting to lose it. it may have been because of some stupid mistakes with those infected needles, but still, who doesn’t make stupid mistakes?
when i went to meet him for the first time, i was planning on making his life less miserable. his last weeks or months shouldn’t be the worst time. i will try, and with my so called warmth, i will make him smile, or at least, i will make him more cooperative.
surprise, surprise! i failed. and i failed big time.
he refused or took meds depending on his moods. he changed his IVF rate, turned it off just because he knew better, and because he knew how to deactivate the lockout system.
he argued about the time of his pain medication and denied i have given him any.
he called often, to remind me i was lying to him about his pain meds. he criticized me for not knowing how to do even the simplest things like taping his IV tubings.
he was not happy with this, he was dissatisfied with that.
nothing was right.
to him, everything i did was wrong. every nurse he met was either lazy or stupid. to him, all the doctors were against him and do not have any idea what they were doing. he is dying because we are not doing what we were supposed to do. on and on and on, it dragged for two nights, and yes, i admit, it unnerved me. it pushed me to the edge.
after three nights off, i went back to work expecting he was transferred, but he was still there. and as luck would have it, not only was he still there, he was my patient again. he just had a bronchoscopy and it was quite difficult to wake him up after they have given him some serious sedatives. i hoped the power of versed combined with dilaudid would last the whole night, but it didn’t.
after about two hours, he was half awake. when i got to his room, he was tyring to put his shoes on. with the calmest voice i can muster, i explained why he shouldn’t go off the unit. not only that he was being monitored, and was hypotensive, but he was obviously still very unsteady. “you are clueless about what i want to eat, so you can’t stop me from going to the cafeteria”, he said. it would have been easier if that was the truth, but the truth was, he wanted to sneak out to smoke, as he had been doing in the past, despite every imaginable reason why he shouldn’t be sneaking out.
“i know i can’t force you to stay, but i hope you realize that what you want to do is unsafe and i do not want you to go”, i told him.
“well, i am going anyway. watch me.”
he was a little wobbly with his first steps, but i didn’t help him, and i didn’t flinch. not only that i didn’t approve of him going off the unit, i was hoping he will listen when he found out he was not that ready to walk alone yet. he was determined, and smugly showed it. i could have repeated my explanations for the nth time, so he will stay, but i didn’t. instead, i walked away. then, i sort of washed my hands and told the charge nurse i’ve had enough. fortunately, she handled it very professionally, and ended up sending our very busy patient care assistant to go with him off the unit after negotiating that he go in a wheelchair.
after that, all my resolves to make a difference flew out of the window. for the next hours, and the night after that, i was so disgusted with him i offered him nothing. no empathy. not even sympathy. not even when he was crying.
i was helping him put his legs up the bed and he started crying about his swollen body being “full of toxins, and all the doctors doing nothing about it.” in between sobs, he was still bashing the doctors and the nurses, it was unbvelievable. without making eye contact i asked him if there was still something i can do to help him. he was a llittle short of breath, but it didn’t stop him from being opinionated. when he started again, he picked up from how the doctors are never doing what they were supposed to do, to how the AM RN didn’t pay any attention to him. apathetically, i left the room while he was still going on and on and on blaming everyone about his miserable life. well, everyone else except himself anyway.
i left him crying, and i offered him nothing. no little touch on the shoulder to let him know i feel his pain. no look of understanding to let him know someone was there for him. none of those. all i offered him was a meaningless stare, which i selfishly thought he fully deserved. i was so cold, i could have left him frozen.
i didn’t plan it, but it turned out, it was not that hard to act like a robot. you know, i was there giving him water, emptying his urinal, changing his sweaty gown, cleaning up his vomit. i was there, but was not really there. listening to him complain about everything made me realize it was impossible to make a difference in his life, and he made me sick.
i know this may sound inhuman or something, but really, while i was taking care of him, i was in such a state of mind or emotion wherein if he dropped dead right there in front of me, i probably wouldn’t care. i lost even the slightest ability to care, and the whole thing just saddens me, that realizing it made me sick of myself.
why can’t i be more compassionate? what does it take to be more patient? what do i do to be more understanding?
should i just shrug my shoulders and say “well, he wants to be miserable, that’s his choice, not mine” and look away? is it justifiable to be cold and unfeeling towards a person who seemingly gloats in the idea of demeaning other people because they are helpless about their own situation?
i don’t know. i just know that’s what i did. at that time, nothing else felt more appropriate. i rationalized over and over that i was only giving him what he was asking for, and that it was right. yet, after everything has been left unsaid and undone, why does everything feel so wrong?
maybe because it is.
maybe because being coldhearted is always wrong.
and i was coldhearted, and i was wrong.


Coldhearted? Naw, frustrated, yes. This IV drug abuser did this to himself and now has a whole institution to inappropriately place the blame. You correctly did your time with him, making sure he was comfortable, refilling his pitcher… yada yada… but you did so without the extras and that’s where you feel coldhearted.
You demonstrated caring without the feeling and that’s alright in my book. Actions speak loudest.If he dies, it is from his own hand. It is sad to think that maybe not many would care, but he has done this to himself.
Comment by pam — April 30, 2007 @ 9:09 pm
I am sorry you had a rough few nights. Sometimes that is all you can do is your job. That patient obsviously was wallowing in his misery, and he wanted to make sure everyone is invited to the party. You had to protect yourself and your sanity. Chin up May. Make sure other rn’s take turn and share the joy.
ttt
Comment by ttt — April 30, 2007 @ 10:34 pm
You have given a very powerful description of how difficult it is to keep caring about someone when he doesn’t care about you or anyone else (even if he is sick and miserable.) One time I had a very angry patient like that and he actually spit in my face. My compassion went right out the window at that point. To be honest, I wanted to hit him. Thankfully, I restrained myself. We are only human. I don’t think we should have to take abuse.
Comment by RN — May 1, 2007 @ 12:11 am
i understand how you feel. i feel the same way too sometimes.i had that almost same experience my pt. died.It’s hard to take care of somebody who doesn’t take responsibilites in their own action! agghhh.. i feel for you kababayan.
Comment by jen — May 1, 2007 @ 2:02 am
I know exactly where you’re coming from, and you didn’t do anything wrong even though of course, you probably feel terrible. just think of your other patients though- if you continued to try to be this saint to this pt (and that’s what you would have to be, a saint, to continue to be compassionate twds him), your other pts would have suffered as a result bc you would have had NOTHING left for them. you would’ve been even more drained than you are now.
Comment by Michelle — May 1, 2007 @ 3:57 am
It doesn’t sound wrong to me. And, although it may be said better above, I agree: You would only have done wrong if you allowed his attitude and your (entirely reasonable) response to that attitude contaminate your interactions with your other patients.
Comment by The Curmudgeon — May 1, 2007 @ 9:15 am
I am terminally ill.I also “did it to myself”. Where
does that rationalization end? I drank 15 beers a day,
every day, and now I’ll die from it… what about someone
who can’t push the plate away and gets NAFLD. Are you
going to blame them too? Everyone gets old. There is a
potty chair somewhere in your future. It’s not too late
wise up! Just because karma is a bitch, doesn’t mean
you have to be.
Comment by Bobby — May 1, 2007 @ 10:49 am
One of the wisest hospice nurses I even knew shared a bit of wisdom
with
me once: “Just because you’re dying doesn’t mean it’s ok to be an
a**hole.”
We are professionals. Generally caring, compassionate professionals,
but
we are also human beings who deserve the same respect that any human
being does. It’s ok to call people–even patients–on their abusive
behavior. It’s ok to to have negative feelings about someone who treats
you like dirt. And when they do not change their behavior (and it’s not
due to cognitive impairment or unendurable and uncontrollable
symptoms),
it’s ok to just “do your job” keep them as safe as cared for as you can
and leave it at that.
I say this all the time to family caregivers, but it applies to
professionals too: if you don’t take care of yourself, you can’t take
care of anyone else. And that includes emotionally protecting oneself
from abuse.
Comment by marachne — May 1, 2007 @ 11:03 am
Hmm. You think nurses should not have limits?? That you are somehow branded perfect when they put that cap on your head?Sorry but we nurses are just human. That you performed his care with professional detachment to leave you with compassion for the REST of your load is just good compartmentalizing. He will remember you. I would not be surprised if he came in to thank you if he has the chance of a personal epiphany before his death. But if not, just brush that incident away. Save your gifts for those who will feed your spirit. it’s the only way to avoid burning out. I fear you may be in danger of that. While ever tender, your blogs have become increasingly vitriolic of late. I hope you have more days when you are nourished in the months ahead. Don’t stop spilling though. NEVER! It’s keeping you afloat. I wish I had a place like this to vent with other nurses when I was in practice. Grok and God Bless
Comment by Audrie — May 1, 2007 @ 11:18 am
Bobby…
first, thanks for dropping by and for your comment.
i just feel like a clarification is needed. i never blamed my patient for “doing it to himself”. on the contrary, i treated him with respect and without judgment.
i was cold towards him as a response to his attitude. that attitude of making it impossible for anyone to help him make his life less miserable. i think there is a big difference in that. it was not his condition caused by his mistakes (because God knows i made/make mistakes too) that caused me to be cold, it was his attitude.
i do know that karma is a bitch. i admit that i was wrong for treating him coldly after reaching my limits, but i don’t think making that mistake makes me a bitch. at least in this particular situation anyway.
Comment by may — May 1, 2007 @ 11:27 am
You tried. You reached out to him. He was an a** hole. He got what he asked for and deserved.
You have behaved professionally the entire time. Don’t waste anymore thoughts on him. He’s not worth occupying your thoughts.
Comment by Melissa — May 1, 2007 @ 12:09 pm
Please, please don’t beat yourself up. I admire you because you tried so hard to be a good nurse and help him. If you got to the point that you didn’t care, it wasn’t because you’re a bad person or nurse—it is because you were like a wrag that had just been wrung completely out. You had been sucked dry—and you literally had nothing left to give emotionally. We humans have only so much of ourselves that we can let others “use up”—and then we have to “back off” in order to protect our own selves from going crazy, insane, or homicidal. I truly believe you did your best and then you had to retreat in order to protect yourself emotionally. And the reason for his negative behavior and alienation of caregivers doesn’t matter. It doesn’t matter WHY he is angry or unpleasant. The truth is…that he bled you dry and your only alternative was to do your job while protecting your emotions. And you are doing it a LOT better than I’ve seen some people do. I’ve seen some nurses get so angry and resentful at a difficult patient that they deliberately/purposefully did things to anger or irritate the patient. But you didn’t do that. You kept doing your job competently and correctly. You’re a good nurse. And you told me this story on a day when I really needed to hear something to help me keep my head up on a difficult day—and so your story helped me. Thank you and hang in there….
Comment by The Bohemian Road Nurse — May 1, 2007 @ 4:00 pm
Girl I am due in 7 weeks and I pray have a nurse that badly wants to help me and I hope they try more than once when I show my ass! You are a wonderful person to have even tried as hard as you did …
I am part owner of a construction company … I try really hard to help our guys. 99.4% of them are uneducated and they all HATE the world …. after 2 tries I turn my back on them too … you can only take so much or you get drug down with them!
Keep your head up and don’t let him bring you down he made his bed it is time for him to lay in it!
Comment by KimmyK - the other one — May 1, 2007 @ 5:39 pm
Unfortunately some people make it impossible to offer them what they need. In our world we sometimes “vote them off the island”.
Comment by Lisa — May 1, 2007 @ 7:19 pm
May, go read Head Nurse’s blog “Meditation on the word No”…..and stop beating yourself up!
Comment by lisa — May 2, 2007 @ 9:37 am
it’s hard to help those who don’t want to help themselves.
don’t beat yourself up May. You were just trying to help.
Comment by kimmyk — May 2, 2007 @ 10:23 am
You are a human with human feelings. A lot of people don’t understand that about nurses. We are human too. He acted like an asshole. He doesn’t have a right to verbally abuse people no matter what the circumstance.
Comment by girlvet — May 2, 2007 @ 7:37 pm
I would like to clarify also, if I may, May. First of all, I have always thought nurses were ’sweet angels’
sent by a loving God to take care of us when we are
suffering some of the lowest points of our lives. After
being the sole caretaker for my best friend of ten years while she was also dying of ESLD, I found out the hard way that while most good nurses seem almost super human,and make the job look effortless, a small percentage are like tornadoes of s–t roaring down the halls,late for pain meds,short on compassion, and full of excuses. Don’t think I was calling you a bitch, I wasn’t. But as for all these other comments , let me say that when you all get your turn at the potty chair
chapter of your life, you won’t want to hear how the
nurse needs to finish all these vitals, while you poop
yourself. Only for you, it will be MUCH worse. You did
this job when you were young, so when dementia is
setting in for good, or when you have stage two hepatic encephalopathy, and are ranting like the AIDS patient,(or my best friend), there will be very little the young brats taking care of you will be able to do as good as you did. You will be hard to please, and they will retaliate by making you wait for that dose of roxynol, or to get you up on the potty chair. Don’t get me wrong, I said that most I met were excellent, but
the ones that weren’t had the same attitude that a lot of these people commenting here have, especially the first one, Pam. Don’t listen to them. Feel bad, learn from it. Early on I made a conscious decision to not argue with her sick liver, cause I knew it wasn’t her talking. Or go ahead, fall for it. Let the patient’s
disease suck you in. Either way, the choice is yours.
Comment by Bobby — May 3, 2007 @ 1:22 am
May, I cared for a number of AIDS patients over the years in this situation and never would I ever take the abuse his guy has tried to heap on you. You are a professional and deserve him to act like a civil human being. The next time he goes off, stop what you’re doing, look him squarely in the eye and tell him his behavior is not acceptable. Tell him you are more than willing to help make him comfortable and take care of him, but he must make the effort to meet you half way and stop the lying. Calling them on the carpet politely is the only way to get them to stop the BS. Everyone running around on tip-toes isn’t going to do work.
Hon’ we all wish we had a nurse like you when we’re in the bed needing care. There’s too few nurses like you to go around. Chin up Sweetie… We appreciate you!
Comment by Mary Lu — May 4, 2007 @ 5:44 am
Bobby, I never meant that because a patient “did this to him or her self” that any nurse is justified to be mean when such a patient is lashing out. I am NOT mean to dying patients who are irritable, no matter how they became ill. I do not withhold pain medication or other comfort measures.
My point had to do with the inappropriately placed blame. The patient was angry with the fact that he was dying and was taking it out on his caregivers.
May is an exceptional nurse. I appreciate the privilege that May has afforded for us health care professionals to read her thoughts and feelings and to respond to her in support and agreement.
I wish you comfort, Bobby.
Comment by Pam — May 4, 2007 @ 9:58 pm
As nurses we all deserve to be treated with respect. Of course, patients do too. I smoked for many years, and I now have COPD. I have been occasionally treated shabbily because of the attitude that I caused this so I “got what I deserve”.
However, I am eternally grateful for the majority who have treated me so kindly and respectfully. Most of us, as nurses, WANT to do the right thing even when it is almost impossible.
Could he have benefited from a psych consult? Sometimes anger is so displaced that we need someone or something to bring us back to reality.
I think you did a good job, May.
Comment by Eileen — May 6, 2007 @ 3:32 pm
ATTITUDE IS EVERYTHING. I remember assisting a terminal patient, maxed out on pain meds, and every slight movement was agony for her. Quite often she would yelp in pain, and almost always had tears running down her face. Yet she never yelled, she didn’t complain, and she was always appreciative of every little thing you would do for her. And then there are those who yell and scream over the least little thing, and do nothing but complain, and feel the whole world is against them and everyone owes them.
So May, I can tell from your blog, when it is your turn on the “potty chair”, you will not behave like the many that you have been dealing with - you also have the advantage of seeing both sides so will be able to remember the caregiver’s perspective. Yes karma can be a bitch, but in your case May, I am sure only good karma is in your future.
We all have bad days, for some people almost every day is a bad day; but unfortunately some people feel the need to take their bad days out on everyone, which not only negatively affects those trying to help, but makes it even worse for themselves.
May, you always get me started on these long winded comments - I need to start a new blog just to comment on what I read here
PS - I envy you - I wish I was able to do what you did - the difficult patient I dealt with in my clinical practice who made me cry probably wasn’t half as difficult as yours - I need to learn from people like you and turn the emotion off to get the job done - if you don’t you just burn yourself out. I think you handled everything the way you were supposed to. Please don’t second guess yourself - you are a great nurse
Comment by Jen — May 6, 2007 @ 8:11 pm
Some people just aren’t that easy to be nice to.
Very often, people with personality disorders have an inherent kind of selfishness that also points them towards addictions that also gain them fatal illnesses such as AIDS and alcoholism.
Some maintain human graciousness. Some don’t. Fuck ‘em. Assholes. God invented pain for such people. And the disdain from others that even nurses must show.
Like the poster said, karma is a bitch. So what. I’ll take mine, with thanks.
There’s a special place in heaven for nurses. But I will gladly give up my space for the forgotten child af any one of those fuckheads that, like the jerkwad May describes, give others such a difficult time.
Wouldn’t you?
Comment by shrimplate — May 7, 2007 @ 10:59 pm
Amen, Shrimplate.
The issue is not about whether or not a patient’s illness is a result of their own actions. The issue is whether or not the patient can allow him/herself to accept the care and compassion of the people who are trying to ease their suffering. If the patient is unwilling to accept the care and compassion offered, then the caregiver has no choice but to stop offering. In that situation, the nurse can do nothing but the “robotic” functions of nursing, and ensure that he/she acts professionally, and with the clinical skill necessary to ensure the patient’s safety. Nothing more, nothing less. The patient May describes reminds me of the countless homeless, intoxicated individuals brought to my hospital to “dry out” in the ICCU where I worked. I offered medication to ease the physical symptoms of withdrawal, I attended to their physical needs, and I took the same care with them as I did with any other patient on my unit. On occasion, one of these patients would express his/her gratitude after the delerium passed, or would feel embarassed by their behavior. Then, and only then, would I pull up a chair next to their bed. I would offer my compassion again, but I was very careful to never offer what I couldn’t afford to lose. The amount of abuse and disrespect a human being can tolerate is finite. Nurses are human beings, too. People sometimes forget that.
Comment by Amy — May 18, 2007 @ 6:09 am
[…] i took a test of patience and i failed it. again. […]
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